Well, 24 hrs later and it feels like days have passed. Wincheng slept 4 hrs straight last night, which she really needed. Her skin is peeling from her hands in huge chunks as a result of the radiation. Mom and I have been giving her daily hand and feet massages with lots of lotion, so no dishpan hands for Wincheng. Today she had less confusion, was more alert and had several bursts of conversation, so better on this front. But her body just isn’t cooperating. Her WBC is still very low and has not changed (0.2); her kidneys are removing more fluid (aided by the diuretic), but they need to do more tests and continue monitoring to ensure her kidneys are doing their other very important job of pulling out toxins. Now they are monitoring her liver and hoping that the elevated bilirubin goes back down to normal levels. Again, more tests, monitoring and waiting. I can’t stand the waiting. I know the monitoring is important to determine the next course of action, but all this waiting is torture!!! Where’s the magic eight ball when you need it? Wincheng did give me some wonderful smiles today, so I know my beautiful sister is still fighting and positive. But of course she’s scared. Who wouldn’t be? This is so F’d up!!! She looked at me with her big brown eyes and said through her oxygen mask, “this wasn’t supposed to be this hard”…broke my heart all over again…been broken since she was first diagnosed two years ago. None of this was supposed to happen. I see people in their 80’s chain smoking without a care in the world. Why does Wincheng have to go through this? Why does she have to suffer? Why, why why?!!!
May 11, 2009
Day 24 – tell me why!!!
Posted by 4wincheng under Bubble girl, double cord blood transplant, Uncategorized[9] Comments
May 11, 2009 at 12:48 pm
Hi,
Neither Wincheng or you, big sis, know me. I’m a friend of Jeanette’s and she told me about Wincheng.
I’ve been keeping her in my thoughts and hoping that all goes well. She’s being amazingly tough and it’s inspiring to read everything that’s been written here.
You, the big sis, are also doing amazing. My mom is undergoing treatment for Leukemia as well, so just being there with her and watching her, I can imagine is so hard for everyone….
Keep up the hard work. I have Wincheng in my thoughts. Thinking happy thoughts, very, very happy thoughts.
-a
May 11, 2009 at 1:32 pm
wincheng – ur in my thoughts win. here’s hoping that this is just the start of you turning the tables on this horsesh*t intruder.
May 11, 2009 at 2:40 pm
Thank you for the updates, Winli. It’s breaking our hearts that we can’t do more but pray and think positive thoughts at this time. We miss her a ton and hopes she gets better soon. Much love to all of you and hope that your family sees better days very soon.
May 11, 2009 at 7:34 pm
I haven’t checked the blog in a while and now that I have it breaks my heart to hear of all these recent developments. I hope for some good news soon. I’ll be keeping you all in my prayers. ❤
May 11, 2009 at 11:47 pm
Thank you, Winlin, both for keeping us updated and for being there for your sister. I know how difficult it is to see a loved one under such tolling medical conditions, so I praise you for keeping Wincheng’s spirits high and maintaining her emotional health during her time of need. Doing so may be all we that we can do, but it nonetheless is crucial to her recovery. Thank you 🙂
May 11, 2009 at 11:49 pm
My bad I meant “Winli”, where’s the edit button on this thing?! 😛
May 12, 2009 at 2:42 am
thanks Winli! we’re thinking about her and your family….glad she gave you a smile. You guys are really her strength.
May 13, 2009 at 8:25 pm
Hi Winli. We’re thinking about you and the family from Trinidad. I’m just now catching up on the blog posting. I love T&T, but goddamn the infrastructure here is a mess!
Jeanette
May 13, 2009 at 8:26 pm
Oops sent too soon. I tried calling your mom to say hello from here, but I think my 868 number is scary. Yikes. Please pass out the hugs for me.